Monday, September 23, 2013

Ok, that is just weird.

Couple of weeks ago, the little one had a several appointments with Children's - speech, neuro, and ophthalmologist. We rotate thru these doctors about every 3-6 months, so they fall usually within several days of each other. It makes for a crazy time especially when it is during tennis season. We thought her neuro visit would be routine, but it was determined the little episode she had this summer was in fact a seizure. Thankfully it was very mild and short compared to the last one, but it did mean that she did have to up her medicine. She has not had any seizures since she had been on the medicine, but it seems that the medication was keeping them from happening. This one broke thru the wall most likely because she was at the top threshold of her weight versus medication amount. This also meant the clock restarted for when she could come off the medication.

While we were dealing with this news, her platelet count had dropped earlier in the week - so we were monitoring that and hoping we were not going to have to get a treatment on top of an already crazy week.  She was to start getting her immunizations up to date, but now it was postponed again. As if this were not enough, we had the second follow-up visit with the eye doctor.  Thankfully her eyes are now almost perfectly aligned, but she is still seeing double.  We are hoping it is just her brain taking time to work around the damaged area to get to "normal". He is going to check the progress again in 3 months, but if it is not better she may have to get glasses fitted with prisms to help.  She usually doesn't complain about it, but I do find her closing one eye to block out the second image.

Here is the new wrinkle - sometime after her last eye surgery, an eyelash got into her eye and is now embedded in the eye membrane. YIKES!! It was not very comforting when the doctor said that is was only the SECOND time he had seen that. Thankfully she does not feel it. We have to watch it so it does not get infected or cause her problems.  Best case scenario is that it could dissolve, but if not he will have to surgically remove it. We do not want to have to do surgery again!

Even though all of this is going on, she is doing well in speech and is almost up to grade level.  She will see a reading specialist soon to check her progress and to see where she is.  She is excited that she has started her 3rd math book (MUS Beta) and continuing to work thru her phonics books in Explore the Code.  The big thing we work on is bringing up her vocabulary.  She knows and reads alot of words, but the meaning of those words are not always there.  It is fun seeing her unlock the code to reading words.

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