Showing posts with label strabismus. Show all posts
Showing posts with label strabismus. Show all posts
Wednesday, June 26, 2013
Here Comes Summer !
School has kinda ended for us. There are a few things left to do, but our end of year testing is over. So, I called the official end, and we promise to work hard in August. We are also still working on finishing their 4H projects. It almost doesn't feel like summer since things haven't slowed down too much. The girls are still doing tennis. Hannah and Emily got home this past weekend from their respective camps and conferences. Rae and I had a good time at home without dad and her sisters. We did have to cut a few things out of our schedule, but we still had some fun.
Emily went to Pioneer Camp at Sky View Ranch. She had a great time and made new friends. She stayed the week in "Conestoga wagons", camp under the stars, ride horses, visit an Amish farm/zoo, and learn more about Jesus. This was her second year to attend this camp, and she cannot wait to go again next year.
Hannah along with Noel attended Student Leadership 101 in Orlando. She was able to learn more about becoming a Christian leader and set under some great teaching of top Christian leaders. I am happy she came back with some more focus on being the best she can be.
This past Saturday, I was glad to have all my family back together after being a week apart.
This week has started off with a bang. Rae had an IVIG treatment to get ready for her second eye surgery next week. This week at church is also VBS. It is fun working along side my girls and seeing Rae have fun in her class. She loves having Ms. Beth. It is had to believe Hannah and Emily are old enough to work in VBS now. I still remember their first time going to VBS - Polar Expedition. My how time flies. Rae is loving the singing and crafts. It is just fun seeing all the kids at church learning about Jesus. I will try to post pics later. I am having issues with my computer.
Tuesday, March 19, 2013
Quick Rae Health Update
Last week we had a busy couple of days of doctors appointments with Rae. In addition to her weekly speech therapy, she had her checkup with her neurologist and ophthalmologist.
Her neurologist is just amazed with how well she is doing. She has not had to up her medicine, and she has not had any seizures either. Her doctor was happy how well she has been doing in speech therapy. She is reading now, and her therapist is helping to fill in the holes in her language that were missing. It is fun to watch her try to sound out EVERYTHING! It is hard to believe it has been almost a year since that horrible morning. Rae is just defying science, but all the thanks can be given to God.
Ophthalmologist appointment was a little more difficult. It was an appointment where they had to dilate her eyes, and do a complete exam. The big question this time was if her eyes were still drifting - sadly - they are. It is definitely better after the first surgery, but she is still occasionally sees double and the right eye drifts. We now need to decide if we go ahead and do the surgery or wait another 6 months. She doesn't complain about it, but I do wonder if that causes her headaches.
This week she will be going to the hematologist to see how things are. She has already had one IVIG treatment this year due to her count dropping way too low. She is doing great with everything she has to deal with.
One appointment coming up I am dreading is the dentist. We were suppose to have already seen them, but due to misunderstanding it has been postponed til next month. I will also be inquiring if we need to go ahead and have some early orthodontia intervention. I am hoping due to having had all those baby teeth removed so early, it has not caused any spacial problems.
So, she is doing really well with everything as long as we just keep on top of everything. We are very thankful to God how He has taken care of her.
Ophthalmologist appointment was a little more difficult. It was an appointment where they had to dilate her eyes, and do a complete exam. The big question this time was if her eyes were still drifting - sadly - they are. It is definitely better after the first surgery, but she is still occasionally sees double and the right eye drifts. We now need to decide if we go ahead and do the surgery or wait another 6 months. She doesn't complain about it, but I do wonder if that causes her headaches.
This week she will be going to the hematologist to see how things are. She has already had one IVIG treatment this year due to her count dropping way too low. She is doing great with everything she has to deal with.
One appointment coming up I am dreading is the dentist. We were suppose to have already seen them, but due to misunderstanding it has been postponed til next month. I will also be inquiring if we need to go ahead and have some early orthodontia intervention. I am hoping due to having had all those baby teeth removed so early, it has not caused any spacial problems.
So, she is doing really well with everything as long as we just keep on top of everything. We are very thankful to God how He has taken care of her.
Wednesday, September 26, 2012
Nine months and a Vacation
It is hard to believe it has been 9 months
since we became a party of five. I think I did miss the 8 month update,
but we were on vacation - a much needed vacation. The last couple of
months have been busy. A couple of highlights of our trip to Myrtle
Beach were:
Before we went on vacation Rae had her eye surgery and her nose cauterized. She did great, and her vision is almost back to normal. Getting her eyes working together caused a little double vision, but it should hopefully clear up soon. Her health has been good, and we have had no hospital visits other than finger sticks. She has also not had any nosebleeds. Her last neurology appointment went well too.
I had ankle surgery after getting back from vacation, so that delayed the start of school. I am still recovering from it. So, the girls started after Labor Day, and it is going well. Hannah is in 8th and is working on doing more independent studying. She happy to be back in art, band, and drama. She is also playing keyboard in the praise band on Sunday mornings until I get back to playing again. She is also still playing in youth praise band. Hannah is also excited for her new piano teacher, especially getting to play in more competitions and festivals. Emily is in now in 6th grade. She is working a little more independent as well. This year like her sister she is playing on the Granville Middle School tennis team. She is also in band, art, drama, and continuing her trumpet lessons. Rae has started doing more school this year. She will start tennis back up soon and is also in a drama/art class for little kids and loved the first class. In school, we are working on learning her letter sounds, addition facts, and we do a lot of read alouds.
Next week we will be celebrating Rae's 7th birthday. We are planning a small party with a couple of friends from church and family. She is very excited to get to dress up and wear her "kong-kong" shoes.
- Rae's first time to the beach
- Loving eating seafood
- Having wonderful family time
- Having friends down for a weekend
- Pirates and Mermaids
- Riding the Caterpillar and a few others rides.
- Getting to go to Alabama to see Nana, Papa Jim and the puppies
Before we went on vacation Rae had her eye surgery and her nose cauterized. She did great, and her vision is almost back to normal. Getting her eyes working together caused a little double vision, but it should hopefully clear up soon. Her health has been good, and we have had no hospital visits other than finger sticks. She has also not had any nosebleeds. Her last neurology appointment went well too.
I had ankle surgery after getting back from vacation, so that delayed the start of school. I am still recovering from it. So, the girls started after Labor Day, and it is going well. Hannah is in 8th and is working on doing more independent studying. She happy to be back in art, band, and drama. She is also playing keyboard in the praise band on Sunday mornings until I get back to playing again. She is also still playing in youth praise band. Hannah is also excited for her new piano teacher, especially getting to play in more competitions and festivals. Emily is in now in 6th grade. She is working a little more independent as well. This year like her sister she is playing on the Granville Middle School tennis team. She is also in band, art, drama, and continuing her trumpet lessons. Rae has started doing more school this year. She will start tennis back up soon and is also in a drama/art class for little kids and loved the first class. In school, we are working on learning her letter sounds, addition facts, and we do a lot of read alouds.
Next week we will be celebrating Rae's 7th birthday. We are planning a small party with a couple of friends from church and family. She is very excited to get to dress up and wear her "kong-kong" shoes.
Hey if you get a chance click on this banner and vote for my blog.
I want to use our blog to encourage and share our story.
Monday, July 30, 2012
Strabismus Repair Day
Today was surgery day for Rae. She had her eyes fixed and her nose cauterized. At some point in time in her life, likely resulting from her stroke, her eyes started drifting or what is called strabismus. It is not always noticeable to most, but it is worse when she is tired or crying. We were not sure if we should get it repaired, but after consulting an pediatric ophthalmologist we went ahead with the surgery. Without repair she would likely lose some of her side vision and her depth perception. It is a fairly simple procedure done as an outpatient procedure.
This morning we headed out bright and early before 5 am for her surgery at Children's. She did great and actually did not need any meds to calm her down. Most of the time she has to go to hospital she get to play on the iPad or my phone. She thought she was going to get to do the same today, but she was sad when she found out there would be no computer this time. She didn't remember much from the last time she had surgery, which was good. We did find out she was sad and cried when she went into surgery. It was funny when I asked her what she wanted to take - her blanket, pillow, and panda all got to go with us this morning, and they also went into surgery with her. It did make my day when I walked into PACU that she wanted her mommy and was calling for me.
Rae came thru both of her procedures just fine. Having her IVIG infusion last week helped get her counts up, which would cut down on any extra oozing, and it definitely helped today. The ENT was able to cauterized several vessels in her nose, and he said we should see a very marked difference. This will be a nice break from having nose bleeds that could send us to the ER. Her eye procedure went well too. Her eyes are red right now and has double vision. They are bothering her, especially right after she came out to recovery. We are having to stay close to her because if she has to move around she is still a little dizzy. It is funny because she is wanting to do it herself, so she scoots or crawls around. The part she is not liking are the eye drops - she was not happy with mom!
Thank you to everyone who has been praying. We are very grateful.
This morning we headed out bright and early before 5 am for her surgery at Children's. She did great and actually did not need any meds to calm her down. Most of the time she has to go to hospital she get to play on the iPad or my phone. She thought she was going to get to do the same today, but she was sad when she found out there would be no computer this time. She didn't remember much from the last time she had surgery, which was good. We did find out she was sad and cried when she went into surgery. It was funny when I asked her what she wanted to take - her blanket, pillow, and panda all got to go with us this morning, and they also went into surgery with her. It did make my day when I walked into PACU that she wanted her mommy and was calling for me.
Rae came thru both of her procedures just fine. Having her IVIG infusion last week helped get her counts up, which would cut down on any extra oozing, and it definitely helped today. The ENT was able to cauterized several vessels in her nose, and he said we should see a very marked difference. This will be a nice break from having nose bleeds that could send us to the ER. Her eye procedure went well too. Her eyes are red right now and has double vision. They are bothering her, especially right after she came out to recovery. We are having to stay close to her because if she has to move around she is still a little dizzy. It is funny because she is wanting to do it herself, so she scoots or crawls around. The part she is not liking are the eye drops - she was not happy with mom!
Thank you to everyone who has been praying. We are very grateful.
Subscribe to:
Posts (Atom)